Collected

480€

To benefit

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<iframe allowtransparency="true" frameborder="0" width="300" height="500" scrolling="no" src="https://www.migranodearena.org/en/widget/spartathlon-challenge-for-rare-diseases-"></iframe>

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Causes

Spartathlon: Challenge for rare diseases.

Dedicated to my father for rare disease research.

Collected

480€

Goal

1.230€

Donations

Left

Finished

39%

In support of

FEDERACIÓN ESPAÑOLA DE ENFERMEDADES RARAS (FEDER)

Cause lead by

Maite Rojo

Category

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<iframe allowtransparency="true" frameborder="0" width="300" height="500" scrolling="no" src="https://www.migranodearena.org/en/widget/spartathlon-challenge-for-rare-diseases-"></iframe>

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Published: 8 Sep 2022

History
About the NGO

This year I am participating in the Spartathlon, one of the most prestigious ultra- distance races in the world, between Athens and Sparta with 246 kms in a maximum of 36 hours.

I dedicated to my father with a degenerative disease called Corticobasal Syndrome (Parkinson Plus) which is very rare and we know very little.

Feder (federation of rare diseases) gives support, workshops and works with research into new diseases.

I want every kilometre to count to help scientific research into this diseases.

Can you help me to achieve this and collaborate with this cause?

FEDER tiene como misión luchar por los derechos e intereses de los afectados con el fin de mejorar su esperanza y calidad de vida. Trabajamos por un mundo en el que las personas que padecen una enfermedad poco frecuente tengan las mismas oportunidades en la vida que el resto de la sociedad, sin importar la rareza de su enfermedad. Somos la voz de las familias, representamos sus derechos y defendemos su voz.